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Team Teddy 5K 2023
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Team Teddy 5K 2023
About
Sponsors
FAQs
Blog
In the Press
Contact
Donate
REGISTER
About
Sponsors
FAQs
Blog
In the Press
Contact
Donate
REGISTER
Today was my first advocacy day on Capital Hill (virtually) for Duchenne and what a wonderful day it was sharing the perspective of a family affected by this debilitating disease with representatives of Connecticut senators and congressmen and congre
2/21/21: Last weekend wasn’t easy, it was a big reminder of the fear of Duchenne and all of it’s complicating issues. Teddy twisted his ankle on Friday night by slipping getting up his Stokke chair at dinner time and was upset and unable
4/21/22: Spring training over here. One of the hardest things of Duchenne is letting go of the fact that your son won’t be able to participate in sports in the way you may have imagined. As a high school national rower, Division I recruit and t
7/5/22: The boys have been loving therapeutic riding the last few weeks! Teddy’s little legs can only tolerate a few minutes, but the staff has been so wonderful in accommodating him to tag along with his big brother. I think I’d love a s
2/26/23: One of the best days ever- Teddy hitting the slopes in NH led by #newenglanddisabledsports alongside his big brother. Thank you NEDS for an amazing experience, what a great day, even with some crazy low temps. #teamteddy5k #jbskeystodmd th
6/20/23: When Teddy’s medications vary in timing, cycle throughout a month or even within a given year, things can get super confusing. I’m a paper and pencil kind of girl, and color coding with highlighters along with setting phone alarm
10/6/22: The search for what’s been causing Teddy’s constant battle with bloating and constipation continues today. We are thankful for the Yale Gut & Constipation team for working together to figure it out. They are testing for a sma
1/6/22: After a nerve racking 3 hour drive in icy conditions yesterday with more accidents seen than I could count, Teddy and I safely made it to his annual Duchenne clinic visit at UMASS. He was brave as always with his stuffy Shell by his side. I c
4/24/2023: This brave little warrior has a long few days ahead at the Children’s Hospital of Philadelphia for further GI testing procedures. Hopeful we finally determine how to prevent the constant bloating battle and can kick this issue to the
Jenny providing hugs after a very long home blood draw afternoon. The nurse told Teddy he’s a brave boy and he responded, “Yes, I am!” This kid! #teamteddy5k
Enjoying a coconut milk milkshake at a quick cheesesteak stop in Philly following the good visit to Children’s Hospital of Philadelphia! Teddy has kicked butt and was able to say goodbye to the feeding tube for good after his checkup! A few mor
After a long afternoon and night last night spending 7 hours in the ER as advised to better get Teddy’s excessive balloon of a belly bloating resolved and assessed for a possible small intestine bacterial overgrowth, we came home without a solu
Excited for his new kicks to go with his new orthotics! Yay for finally sizing up with adaptive sneakers by See Kai Run that allow for independence! #teamteddy5k

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